Effective Date

January 1, 2017

Scope of This Policy

This online privacy policy (this “Policy”) applies only to information collected through UsAgainstAlzheimer’s-owned websites on which it is posted. It does not apply to third-party platforms or to UsAgainstAlzheimer’s-owned websites or other UsAgainstAlzheimer’s-owned platforms on which it is not posted. It also does not apply to information collected through other channels, such as over the phone or in person, or as part of a clinical study.Some of the information we collect through this Site may be “personal information”—information that identifies you personally, alone or in combination with other information available to us. Other information may be nonpersonally identifiable, such as information collected by cookies.

This Policy may be supplemented or amended from time to time by additional privacy notices (“Privacy Notices”), provided at the time we collect your information. For example, certain pages of this Site may contain Privacy Notices providing more details about the information we collect on those particular pages, why we need that information, and choices you may have about the ways we use that information. In other cases, specific Privacy Notices may be required to comply with the privacy laws of one of the countries, provinces, or states in which we do business.

Your Consent

By using this Site, you are consenting to the collection, use, disclosure, and transfer of your information as described in this Policy (and any Privacy Notices that apply to you). If you do not consent to the collection, use, disclosure and transfer of your information as described in this Policy (and any Privacy Notices that apply to you), you may not use this Site. If you have questions about this Policy, or any Privacy Notice, please contact us using the information provided below.

Our Terms of Use

This Policy is part of the Terms of Use that govern your use of this Site. A link to our Terms of Use is provided at the bottom of each page of this Site.

Your Choices

In General. We respect your right to make choices about the ways we collect, use, and disclose your information. This Policy describes some of your choices, such as your choice to opt out of receiving “cookies.” We may ask you to indicate your choices at the time and on the page where you provide your information.

Do Not Track Mechanisms. California law requires this Policy to address how we respond to any “Do-Not-Track (‘DNT’) signal” delivered by your browser. Because of the changing state of technology and indecision within the industry regarding the meaning of DNT signals, we currently do not make any guarantee that we will honor DNT signals.

Previously Expressed Preferences. You may change previously expressed preferences regarding how we use your information. If at any time you wish to be taken off our mailing lists, please contact us using the information provided below.

This Policy May Change

UsAgainstAlzheimer’s reserves the right to update or modify this Policy and any Privacy Notice, at any time and without prior notice, by posting the revised version of the Policy or Privacy Notice on this Site. These changes will only apply to the information we collect after we have posted the revised Policy or Privacy Notice on this Site.

Your use of this Site following any such change constitutes your agreement that all information collected from or about you after the revised Policy is posted will be subject to the terms of the revised Policy. You may access the current version of this Policy at any time by clicking on the link marked “Privacy” at the bottom of each page of the public areas of this Site.

Information We Collect

Information You Manually Provide. UsAgainstAlzheimer’s collects the information you manually provide (using your keyboard, mouse, or touchpad) when you use this Site, for example, we collect the information you provide when you complete a pre-screening questionnaire, contact us with questions, or otherwise interact with this Site. Some of the information you manually provide may be personal information, such as your name and contact information.

Surveys. UsAgainstAlzheimer’s may ask you to complete surveys that we use for research and analysis purposes. Your participation, while appreciated, is not compulsory.

Information from your browser or device. UsAgainstAlzheimer’s collects information that is sent to us automatically by your web browser or mobile device. This information typically includes your IP address, the name of your operating system, the name and version of your browser, the date and time of your visit, and the pages you visit. The information we receive may depend on your browser or device settings. The information we receive from your web browser and device typically is not, in and of itself, personally identifiable. However, we may combine it with other information in an attempt to identify you or we may combine it with information that does identify you.

Information Collected by Cookies and Other Technologies. We use “cookies” and other technologies to collect information and support certain features of this Site. For example, we may use these technologies to:

• collect information about the ways visitors use this Site—which pages they visit, which links they use, and how long they stay on each page;
• support the features and functionality of this Site—for example, to save you the trouble of reentering information already in our database or to prompt the settings you established on previous visits;
• personalize your experience when you use this Site; and
• improve our marketing efforts, including through use of targeted advertising.

The information we collect using cookies and similar technologies is not, in and of itself, personally identifiable, but we may link it to personal information that you provide. If you do not wish to receive cookies, you may set your browser to reject cookies or to alert you when a cookie is placed on your computer. Although you are not required to accept cookies when you visit this Site, you may be unable to use all of the functionality of this Site if your browser rejects our cookies.

Information About Third-Party Cookies

In addition to the cookies UsAgainstAlzheimer’s delivers to your computer or mobile device through this Site, certain third parties may deliver cookies to you for a variety of reasons. For example, we use Google Analytics, a web analytics tool that helps us understand how visitors engage with our Sites. To learn more about Google Analytics, click here.

Other third parties may deliver cookies to your computer or mobile device for the purpose of tracking your online behaviors over time and across nonaffiliated websites and/or delivering targeted advertisements either on this Site or on other websites.You have choices about the collection of information by third parties on our Sites. For example, if you don’t want information about your visit to this Site sent to Google Analytics, you may download an Opt-out Browser Add-on by clicking here. Please note that the Add-on does not prevent information from being sent to UsAgainstAlzheimer’s.

In addition, if you would like to opt-out of having interest-based information collected by certain entities during your visits to this Site or other websites, please click here. You will be directed to an industry-developed website that contains mechanisms for choosing whether each listed entity may collect and use data for online behavioral advertising purposes. It may be that some of the third parties that collect interest-based information on this Site do not participate in the industry-developed opt-out website, in which case the best way to avoid third-party tracking of your online behaviors may be through your browser settings and deletion of cookies. Please note that the industry-developed opt-out mechanism is device and browser specific. If you wish to opt-out from having interest-based information collected by participating entities across all devices and browsers, you need take the steps outlined above from each device and browser.

How We Use Your Information

Generally, we use the information we collect through this Site:

• to identify and/or connect patients, caregivers, patient advocacy organizations and researchers with individuals in industry and academia for the purpose of developing, conducting, and disseminating patient/caregiver-centered dementia research;
• to invite you to participate in surveys and studies and to provide Feedback to us (in accordance with any privacy preferences you have expressed to us);
• to provide the information, products and services you request;
• to provide you with effective customer service;
• to provide you with a personalized experience when you use this Site;
• to contact you with information and notices related to your use of this Site;
• to contact you with special offers and other information we believe will be of interest to you (in accordance with any privacy preferences you have expressed to us);
• to improve the content, functionality and usability of this Site;
• to better understand your needs and interests;
• to improve our products and services;
• to improve our marketing and promotional efforts;
• for security, credit or fraud prevention purposes; and
• for any other purpose identified in an applicable Privacy Notice, click-through agreement or other agreement between you and us.

How We Share Your Information

With Third–Party Vendors. UsAgainstAlzheimer’s shares information collected through this Site with third-party vendors who act for us or on our behalf. For example, we may use third-party vendors to design and operate this Site; to conduct surveys and clinical studies; and to help us with our promotional efforts. These third-party vendors may need information about you to perform their functions.

With Third-Party Social Media Platforms. We may also use third-party social media platforms to offer you interest-based ads. To offer such ads, we may convert your email address into a unique value which can be matched by our partner company with a user on their platform. Although we do not provide any personal information to these platform vendors, they may gain insights about individuals who respond to the ads we serve.

Within the UsAgainstAlzheimer’s Corporate Family. We may share information collected through this Site with other companies in the UsAgainstAlzheimer’s corporate structure. These affiliate companies are permitted to use your information for their own marketing purposes and in a manner otherwise consistent with this Policy.

For the Purpose of Determining your Eligibility for a Clinical Study. We may share your information with business partners or potential study center(s), including but not limited to researchers and other individuals at pharmaceutical companies, medical device companies, non-profits, and research institutions, so that they may contact you to see if you are a suitable candidate for one of our clinical studies.

With Other, Carefully Selected Business Partners. From time to time, we may share your information with selected third parties for their own marketing purposes. For example, we may partner with third parties to sponsor contests or other promotions, and we may share with these third parties the information you submit to us to participate in the contest or take advantage of the promotion. Before doing so, however, we may offer you the opportunity to “opt out” or “opt in,” as required by applicable law.

In Aggregate or De-Identified Form. We use information collected through this Site to create a compiled, aggregate view of usage patterns. We may share aggregate information with third parties so they can better understand our user base. We may also share with third parties information about how particular individuals use this Site, but only on a de-identified basis (“Individualized Data”). Individualized Data is not personally identifiable, but it does reflect the usage patterns of a particular Site user, as opposed to Site users collectively.

As Part of a Business Transfer. Your information may be transferred to successor organization if, for example, we transfer the ownership or operation of this Site to another organization or if we merge with another organization or liquidate our assets. If such a transfer occurs, the successor organization’s use of your information will still be subject to this Policy and the privacy preferences you have expressed to us.

To Comply with Laws and Protect Our Rights and the Rights of Others. We may disclose your information when we, in good faith, believe disclosure is appropriate to comply with the law, a court order or a subpoena. We may also disclose your information to prevent or investigate a possible crime, such as fraud or identity theft; to protect the security of this Site; to enforce or apply our online Terms of Use or other agreements; or to protect our own rights or property or the rights, property or safety of our users or others.

As Described in a Privacy Notice or Click-Through Agreement. We reserve the right to disclose your information as described in any Privacy Notice posted on a page of this Site where you provide that information. By providing your information on that page you will be consenting to the disclosure of your information as described in that privacy notice. We also reserve the right to disclose your information as described in any click–through agreement to which you have agreed.

How We Protect Your Information

UsAgainstAlzheimer’s takes reasonable precautions to provide a level of security appropriate to the sensitivity of the information we collect. Although we use reasonable measures to help protect your information against unauthorized use or disclosure, we cannot guarantee the security of information provided over the Internet or stored in our databases and will not be responsible for breaches of security beyond our reasonable control.

Children’s Privacy

You must be at least 13 years old to have our permission to use this Site. We do not knowingly collect, use or disclose personal information about visitors under 13 years of age. If you are under the age of 13, please do not use this Site.

Links to Other Websites

This Policy applies only to UsAgainstAlzheimer’s-owned websites on which it is posted. UsAgainstAlzheimer’s and its affiliates operate many different websites for different purposes and in different countries, where different laws may apply. If you visit another UsAgainstAlzheimer’s website, please take a moment to review the privacy policy posted on that site to learn what information may be collected through that site and how it is processed.

This Site may also contain links to websites that are not operated by UsAgainstAlzheimer’s or its affiliates. These links are provided for your reference and convenience only and do not imply any endorsement of the products sold or information provided through these websites, nor any association with their operators. UsAgainstAlzheimer’s does not control these websites and is not responsible for their data practices. Any information you provide to third parties on their websites is covered under their privacy and data collection policies and is not covered by this Policy. We urge you to review the privacy policy posted on any site you visit before using the site or providing any personal information.

Access to Your Information

If you would like to review, correct and update the personal information you have provided to us through this Site, you can log in to your personal account and go to ‘My Profile’ or contact us using the information provided below. We will respond to your request within a reasonable time or within the time limit set out by applicable privacy law. We will use reasonable efforts to comply with your request, as required by applicable law.

Retention of Personal Information

UsAgainstAlzheimer’s retains the personal information collected on this Site as long as necessary to fulfill the purpose for which it is collected or as permitted by applicable law.

This Site May be Hosted on Servers Outside the Country Where You Reside

UsAgainstAlzheimer’s is a U.S. corporation and this Site is intended for a U.S. audience. The servers that support this Site and on which we store the information you provide to us through this Site may be located in a country other than where you reside. U.S. data protection laws may not provide as much protection as the data protection laws in force in some other countries. However, we will process your information in accordance with this Policy no matter where our data is stored. If you are located in a country other than the United States, by using this Site you consent to the transfer of your information to the United States.

Governing Law

This Policy shall be governed under the laws of the state of Delaware, United States of America without regard to its conflicts of law provisions.

Questions About This Policy or UsAgainstAlzheimer’s Data Practices

If you have questions or concerns about this Policy, any Privacy Notice, or UsAgainstAlzheimer’s data practices, please contact us by email at [email protected]. You may also contact us at:

UsAgainstAlzheimer’s

5614 Connecticut Ave. NW #288

Washington, DC 20015-2604

Telephone: 202-410-5199