UsAgainstAlzheimer’s A-LIST® is an Online Community

where people with Alzheimer’s disease and other dementias, mild cognitive impairment, and family caregivers come together to research the experience of living with this disease and caring for a loved one. We call it the science of us.

Join the 8,206 A-LIST members who are letting the world know what matters most to us. 

How the A-LIST Works:

Online surveys: Twice a month you will receive an email from A-LIST Founder Meryl Comer inviting you to answer a short survey.

Surveys ask about the issues we care about: Past survey topics include challenges for caregivers; dementia symptoms, such as agitation; managing the COVID-19 pandemic; and traveling with dementia.

We use anonymous survey results to make life better for our community: We make sure policy makers, researchers, health care providers, drug developers, insurers, and others who serve our community understand and consider our insights and preferences.

Get started! CLICK HERE to add your name, then check “I Agree” to sign our consent form that explains the A-LIST study. Then take our first online survey: the Pulse of the Community.

"There is strength in the number of caregivers willing to devote their daily lives to improving the lives of their loved ones suffering from Alzheimer’s. The A-LIST nurtures that strength by bringing us together to facilitate a path to a cure, and centering on the needs of both culturally diverse patients and caregivers." - A-LIST Caregiver

What We’ve Learned: The Impact of COVID-19

  • 86%

    of caregivers report having at least one stress symptom typically found in people experiencing severe stress.

  • 46%

    of people with dementia report a decline in memory.

“At the same time as my dad is rapidly declining, my husband is struggling with depression and memory issues to the point of losing his job after exhausting Family and Medical Leave. I am stretched very thin and feel drained and overwhelmed.” - A-LIST Caregiver 

UsAgainstAlzheimer’s Takes Action: 2020 National Summit Town Hall

COVID-19 and Dementia: Lessons for the Next Pandemic

Watch Here

A-LIST in the News

Barron's: The Other Pandemic: What to Do About the Coming Alzheimer’s Crisis

The Latest A-LIST Publications

A-LIST Pulse of the Community, Volume 7, December 2020: Impacts of the Coronavirus Crisis on the Alzheimer’s Community

"Caregiver Perspectives on the Burden and Impact of Agitation in Caring for Loved Ones with Dementia/Alzheimer’s Disease," Clinical Trials on Alzheimer's Disease (CTAD) 2020.

Find the Full List of A-LIST Publications Here

Research Partners

Mayo Clinic
The Balm in Gilead
Home Instead
Diverse Elders Coalition
National Association of Hispanic Nurses
Accelerated Cure Project
Genetech
Cohen Veterans Bioscience

UsA2 Voices of Alzheimer’s Program

Our vision is that rigorous data on what matters most to people living with dementia and care partners – the science of us – drives policy, research, drug development and access decisions affecting their lives. This program, which includes the A-LIST and AD PACE, develops patient and caregiver insights and experience data to inform advocacy, research, regulatory approvals, access determinations, care and services. This work will offer new knowledge to the field generally and advance drug development.

A-LIST Team

Meryl Comer UsA2 Founding Board Member

Meryl Comer

Founding Board Member
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Theresa Frangiosa

Project Lead, AD PACE and A-List

Amber Roniger

Project Manager, A-LIST
For questions about A-LIST membership or partnership, please contact Virginia Biggar [email protected].
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